Organizations and Websites for Patients and Caregivers

Caregiver Focused Organizations

• AARP: "Pain"
  • Family Caregiving
• AGS Health in Aging: Pain Management
  • Caregiver Guide: Pain
• Best Practice Caregiving: Evidence-Based Dementia Programs
• National Alliance for Caregiving: Caregiving in America
• Today's Caregiver
  • Effective Pain Management
  • Care for the Caregiver
• U.S. Department of Veterans Affair
  • VA Pain Management
  • Support for Caregivers
• U.S. National Library of Medicine: Caregivers
• Well Spouse Association: Caregiver Support
  • "New Active Coping Strategies for Caregivers" video

Pain/Disease Focused Organizations

• Alzheimer's--

  • Alzheimer's Association: "Pain"
    • "Recognizing Pain in People with Dementia" PDF
    • Caregiver Health
  • Memory Care: Resources for Veterans

• Arthritis--

  • Arthritis Foundation: Arthritis Pain Management

• Cancer--

  • Cancer Care: "Pain"
    • Managing Cancer Pain
    • Opening the Door to Effective Pain Management
  • Cancer.org:
    • Facts About Cancer Pain
    • Managing Cancer Pain at Home
  • Cancer Community
    • Pain & Neuropathy (nerve pain)
    • Quality of Life for Cancer Patients: Managing Pain
    • Recipes for Mouth Pain
  • Mesothelioma Cancer Alliance: Palliative Care

• Diabetes--

  • American Diabetes Association: Neuropathy
    • Peripheral Neuropathy (nerve pain-hands, legs, feet)
    • Steps to Prevent or Delay Nerve Damage

• Fibromyalgia--

  • NIAMS: Overview of Fibromyalgia
    • Living With Fibromyalgia
  • MedlinePlus: Fibromyalgia

• Gout--

  • WebMD: Gout Directory
    • "What is Gout?" video
    • "Living with Gout" video
    • Treating Gout at Home

• Pain (general)--

  • Alberta Centre on Aging: Observing and Talking about Pain Behaviors
  • National Institute on Aging: Pain: You Can Get Help
    • Go4Life: Exercising with Pain
  • University of South Florida School of Aging Studies & Florida Policy Exchange Center on Aging: Flip the Script on Pain
    • "Understanding Pain" PDF
    • "Managing Pain" PDF

• Parkinson's--

  • Parkinson: Pain
    • "Pain in Parkinson's Disease" PDF
    • Keys to Parkinson's (caregiver resources)

Useful Pain Resources

• Understanding Pain in Less Than Five Minutes (Brief video with a holistic perspective on persistent pain)
• "An Interdisciplinary Look at Labeling Changes to OTC Analgesics and the Implications for Patient Care" PDF